Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in life

When she began experiencing head pain as a student, Dawson was diagnosed with a breakdown and sectioned. She actually had encephalitis. Five years on, now paralysed in one leg, she is speaking out for disability rights

Lucy Dawson was skating through life. Everything came so easily to her: she had friends, confidence, academic success. At the age of 20, she was studying criminology at the University of Leicester, determined to join the police. Then, in the summer of 2016, she got a terrible headache that refused to go away.

The headache was to change Dawson’s life. It took almost four months for her to be diagnosed with autoimmune encephalitis, an acute inflammation of the brain that leaves many people with permanent brain damage and has a mortality rate of about one in 10. She was showing classic symptoms of encephalitis from the off (confusion, personality change, hallucinations and the headaches) which should have been spotted within a couple of days.

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