What price a child’s life? India’s quest to make rare disease drugs affordable

Parents whose only hope was finding foreign sponsorship or a clinical trial are now looking for homegrown breakthroughs

For three years, Vidya tried to find the cause of her son’s recurrent fevers and low cognitive development. When she found out, she was devastated.

Vineeth, 10, has an incurable illness – mucopolysaccharidosis type 2 – that affects his organs. Afflicting just one in a million, the enzyme-replacement medication that can help stop the illness getting any worse costs £100,000 a year, far beyond the reach of even a wealthier Indian parent.

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‘Wolf in watchdog’s clothing’: India’s new digital media laws spark fears for freedoms

Everything from online news to social media and streaming platforms are captured by the regulations, branded ‘palpably illegal’ by opponents

Not long before he was elected as India’s prime minister in 2014, Narendra Modi spoke of his dreams of a “digital India”, where “access to information knows no barriers”.

But this week, unprecedented barriers on every form of digital content, from online news to social media and films and television on streaming platforms, came into force, making India’s digital realm one of the most heavily regulated of any major democracy.

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Caste aside: hide names to curb Dalit job bias in India, study says

Concealing candidates’ surnames in the ultra-competitive civil service exam would help to overcome caste prejudice, report urges

The exam is considered to be the country’s toughest – about a million people sit it every year vying for only a thousand or so vacancies in India’s hallowed civil service. Now a report suggests that it would be much fairer if all the candidates’ surnames were kept secret throughout the application process, as about 90% of Indian surnames reveal a person’s caste.

Candidates’ names are currently concealed, along with their religion, when they sit the written tests. But after the exam, the names of those who qualify for the final interview stage are used. And this, according to the report, scuppers the chances of Dalits, the lowest Hindu caste once called “untouchables”, because of the innate bias of interviewers.

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Indian theatre festival forced to close after Hindu vigilantes object to satirical plays

Bajrang Dal hardliners in Madhya Pradesh threaten violence over plays ‘disrespectful to the Indian flag’

Rightwing Hindu vigilante groups in the Indian state of Madhya Pradesh have forced the cancellation of an annual theatre festival, after threatening violence over satirical plays they accused of being “anti-national”.

The annual theatre festival organised by the Indian People’s Theatre Association in the small town of Chhatarpur became the object of abuse and violent threats by Bajrang Dal, a hardline Hindu group linked with the ruling Hindu nationalist Bharatiya Janata party (BJP).

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Australia urged to back plan to let poor countries make cheap copies of Covid vaccines

Exclusive: union, health and aid groups plead with the Morrison government to support a WTO proposal to suspend vaccine patents during the pandemic

International aid groups, health organisations and unions are pleading with the Morrison government to support a World Trade Organization proposal designed to allow developing countries to make and sell cheap copies of patented vaccines, to achieve a quicker end to the global pandemic.

The WTO proposal would suspend Covid vaccine patents for successful jab formulas invented by pharmaceutical giants for the duration of the pandemic so poorer countries could acquire more affordable doses faster.

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Female workers at H&M supplier in India allege widespread sexual violence

Multiple women at Natchi Apparels have reported abuse weeks after 21-year-old worker was allegedly killed by her supervisor

Women in India making children’s clothes for H&M have spoken out about widespread sexual violence they claim to have faced at one of the company’s suppliers in India.

The allegations come just weeks after the body of Jeyasre Kathiravel, a 21-year-old Dalit garment worker, was found in a field close to her family home after she failed to return from her shift at the Natchi Apparels factory in Tamil Nadu.

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How pandemic may finally sink Kashmir’s famous houseboats

Building and repair ban had turned Dal Lake into graveyard for sinking boats even before coronavirus and Delhi crackdown

Ghulam Nabi Butt may be 90 years old, but he has never forgotten the three days that George Harrison came to stay on his houseboat in October 1966.

It was here, on one of Butt’s first historic Clermont houseboats moored on the northern bank of Dal Lake in Srinagar, Kashmir, that the Beatles lead guitarist met the Indian musician and composer Ravi Shankar and was taught to play the sitar – marking the beginning of an musical collaboration that would last decades.

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Dalai Lama urges people to get Covid vaccine after having first dose

Tibetan spiritual leader, 85, receives jab at hospital in north Indian city of Dharamshala

The Dalai Lama, the 85-year-old Tibetan spiritual leader, was administered the first shot of the coronavirus vaccine on Saturday at a hospital in the north Indian hill city of Dharamshala.

After receiving the injection, he urged people to be brave and come forward to be vaccinated.

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Hong Kong activists and plight of the Uighurs: human rights this week in photos

A roundup of the coverage on struggles for human rights and freedoms, from Colombia to the Sahara

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India’s top judge tells accused rapist to marry victim to avoid jail

Sharad Arvind Bobde faces calls to resign over remarks to government technician about schoolgirl

India’s top judge is facing calls to resign after telling an accused rapist to marry his schoolgirl victim to avoid jail.

More than 5,000 people have signed a petition demanding that the chief justice Sharad Arvind Bobde quit after he told the government technician at a hearing: “If you want to marry [her] we can help you. If not, you lose your job and go to jail.”

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Naomi Klein: how big tech helps India target climate activists

Companies such as Google and Facebook appear to be aiding and abetting a vicious government campaign against Indian environmental campaigners

The bank of cameras camped outside Delhi’s sprawling Tihar jail was the sort of media frenzy you would expect to await a prime minister caught in an embezzlement scandal, or a Bollywood star caught in the wrong bed. Instead, the cameras were waiting for Disha Ravi, a nature-loving 22-year-old vegan climate activist who against all odds has found herself ensnared in an Orwellian legal saga that includes accusations of sedition, incitement and involvement in an international conspiracy whose elements include (but are not limited to): Indian farmers in revolt, the global pop star Rihanna, supposed plots against yoga and chai, Sikh separatism and Greta Thunberg.

If you think that sounds far-fetched, well, so did the judge who released Ravi after nine days in jail under police interrogation. Judge Dharmender Rana was supposed to rule on whether Ravi, one of the founders of the Indian chapter of Fridays for Future, the youth climate group started by Thunberg, should continue to be denied bail. He ruled that there was no reason for bail to be denied, which cleared the way for Ravi’s return to her home in Bengaluru that night.

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Rooster fitted with blade for cockfight kills its owner in India

Bird with knife attached to leg ready to take on opponent inflicts fatal injuries to man’s groin

A rooster fitted with a knife for an illegal cockfight in southern India has killed its owner, sparking a manhunt for the organisers of the event, police said.

The bird had a knife attached to its leg ready to take on an opponent when it inflicted serious injuries to the man’s groin as it tried to escape, officers said. The man died from loss of blood before he could reach a hospital in the Karimnagar district of Telangana state earlier this week, local police officer B Jeevan told AFP.

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Revealed: 6,500 migrant workers have died in Qatar as it gears up for World Cup

Guardian analysis indicates shocking figure likely to be an underestimate, as preparations for 2022 tournament continue

More than 6,500 migrant workers from India, Pakistan, Nepal, Bangladesh and Sri Lanka have died in Qatar since it won the right to host the World Cup 10 years ago, the Guardian can reveal.

The findings, compiled from government sources, mean an average of 12 migrant workers from these five south Asian nations have died each week since the night in December 2010 when the streets of Doha were filled with ecstatic crowds celebrating Qatar’s victory.

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Not cricket: religious divide threatens a last bastion of secular India

Allegations against Wasim Jaffer of favouritism raise fears that anti-Muslim sentiment is infecting the game

It is often described as India’s greatest unifier, a sport that – at least on the field – has been insulated from the religious schisms that have long divided the country.

But in recent weeks cricket’s position as one of the final bastions of a secular India has come under attack, as the anti-Muslim sentiment that has been on the rise in India under the ruling Hindu nationalist Bharatiya Janata party (BJP) reared its head in an ugly cricketing scandal.

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Vaccine diplomacy: west falling behind in race for influence

While the UK and US strive for herd immunity, Russia and China are leveraging their Covid jabs

“Today it is easier to get a nuclear weapon than to get a vaccine,” the Serbian president, Aleksandar Vučić, declared in January. He was bragging. The Balkans country had just received its first shipment of almost 1m Covid-19 vaccine doses from Sinopharm, a state-owned Chinese pharmaceutical company.

Since then, Serbia has augmented its stockpile with tens of thousands of shots of Russia’s Sputnik V, signed an agreement to build a bottling plant for the Russian vaccine and now boasts the fastest vaccination rate in continental Europe.

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Gone fishing: the fight to save one of the world’s most elusive wild cats

With webbed feet and a tail for a rudder, Asia’s fishing cats face shrinking habitats. But conservation efforts in West Bengal are helping it swim against the tide

For more than a decade, wildlife biologist Tiasa Adhya has spent many a day (and night) in a small wooden boat, silently gliding through dense vegetation in the wetlands and mangroves of West Bengal, scanning the banks for signs of a rarely seen wild cat – the fishing cat (Prionailurus viverrinus).

Fishing cats are fascinating animals,” she says. “They have co-inhabited riverine deltas and floodplains alongside humans for centuries. Ancient cultures like the Khmer empire show evidence of fishing cats.” As co-founder of the world’s longest-running fishing cat research and conservation project, Kolkata-based Adhya is dedicated to this endangered felid, one of the least-studied and understood wildcats.

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Stateless, stuck and desperate: the militants’ wives trapped in Kashmir

Hundreds married to men who travelled to Pakistan for militant training now find themselves stateless

Under dark skies in Kashmir’s heavily militarised town of Kupwara, Saira Javed mournfully recalled her happy childhood.

Recounting her early life in Karachi, a bustling metropolis over the border in Pakistan, she spoke vividly of her father, Abdul Latif, who would take their large family on weekend picnics and of the moonlit nights she spent dying her hands with henna.

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India: activist arrested over protest ‘toolkit’ shared by Greta Thunberg

Disha Ravi charged with sedition, accused editing document on how to support India’s farmers that was tweeted by Swedish climate activist

Indian police have charged a 22-year-old climate activist with sedition over accusations she edited and circulated a document tweeted by climate activist Greta Thunberg relating to India’s ongoing farmer protests.

Swedish climate activist Thunberg tweeted her backing this month for the farmers, who have been demonstrating since December against agricultural reforms they say will harm their livelihood but benefit large corporations. She shared a document which she said was a toolkit to create and spread awareness about the farmers’ complaints.

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‘We took a huge risk’: the Indian firm making more Covid jabs than anyone

Adar Poonawalla, chief executive of the Serum Institute of India, on vaccines, regulation and what comes next

Adar Poonawalla, 40, is the chief executive of the Serum Institute of India (SII), the Pune-based, family-owned vaccine manufacturer that is producing more Covid-19 vaccines by dose than any other in the world. For now it’s the Oxford/AstraZeneca vaccine rolling off its production lines, but SII has signed contracts with three other developers – Novavax, Codagenix and SpyBiotech – all of which have candidates in the works.

Did you ever imagine you would be making vaccines for a global pandemic?

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Roaring crowds, roti and Rihanna: the view from a Delhi farm protest camp

As rhetoric rises on both sides, Indian farmers at the Singhu camp say they are going nowhere

Puffing out his chest, his lime green turban luminescent in the morning sun, Surinder Singh made it clear he was a man who would not easily be moved. “We will stay here five years, 10 years if we have to,” the farmer said with a steely smile. “As long as it takes.”

A roar of approval greeted his words from fellow farmers who had gathered for breakfast at Singh’s chai stand at the Singhu camp, one of three main protest camps on the outskirts of Delhi. Singh, a small-scale farmer from India’s northern state of Punjab, is just one of hundreds of thousands to have made Singhu his home since November, living out of the back of his now fully furnished tractor trailer.

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