Parents caring for seriously ill children in UK could get financial support under ‘Hugh’s law’

Proposals considered by government would strengthen protections for parents forced to become full-time carers

Thousands of parents who are forced to become full-time carers after their child becomes seriously ill would be entitled to financial support and job protections under new “Hugh’s law” proposals being floated by the government.

Hugh’s law is named after Hugh Menai-Davis, who was six when he died in 2021 just under a year after being diagnosed with a rare form of cancer and undergoing 10 months of intensive treatment, much of it in hospital.

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DWP pursued woman’s employer for nonexistent ‘benefit debt’

Exclusive: Employer of woman who cares for disabled mother was asked to deduct ‘debt’ from salary despite court ruling she had nothing to pay

A woman providing full-time unpaid care for her elderly disabled mother says her job was put in jeopardy after welfare officials wrongly pursued her employer for a nonexistent “benefit debt” quashed by the courts nearly four years ago.

The 44-year-old woman said she was staggered when the Department for Work and Pensions (DWP) wrote to her employer out of the blue this month demanding they deduct the long-forgotten universal credit overpayment “debt” from her salary.

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Older people risk mental decline if they do long hours of caring, UK study shows

Researchers find 50+ hours a week can be detrimental to health but lighter responsibilities have positive effect

The stresses and strains of caring for someone for 50 hours or more a week leads to “accelerated cognitive decline” in middle-aged and older people, research shows.

However, providing care for only five to nine hours a week has the opposite effect, boosting brain health so much that the benefits last until older age.

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Thousands of unpaid carers to face DWP repayment demands during overhaul

Ministers admit carer’s allowance penalties will continue while review of more than 200,000 cases is carried out

Thousands of unpaid carers will continue to be hit with hefty and potentially unfair benefit repayment demands, it has emerged, as a government initiative gets under way to fix welfare injustices that have drawn comparison to the Post Office scandal.

Ministers will on Monday launch an audit of more than 200,000 historical carer’s allowance benefit cases, with an estimated 25,000 carers issued with unlawful overpayments since 2015 likely to see their repayment debts cancelled or reduced as a result.

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MPs threaten fresh inquiry into carers allowance scandal amid redress delays

Unpaid carers say they remain ‘in limbo’ as DWP continues to pursue discredited repayment bills

MPs have threatened to launch a fresh inquiry into the handling of the carers allowance scandal after unpaid carers spoke of being “stuck in limbo” by the government’s response.

The warning came amid concerns over delays in Department for Work and Pensions (DWP) plans to offer redress to tens of thousands of carers who were unfairly issued with overpayment bills based on discredited official guidance.

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Head of carer’s allowance inquiry blames DWP ‘resistance’ for failure to fix crisis

Liz Sayce tells MPs some civil servants tried to minimise extent of problems and deflect blame

The head of an official inquiry into carer’s allowance has criticised “forces of resistance” inside the Department for Work and Pensions (DWP) that undermined ministerial attempts to fix longstanding problems with the much-criticised benefit.

Liz Sayce, whose review of carer’s allowance was published in November, said rather than owning the problems, some at the DWP had tried to “minimise” the extent of the department’s failures and sought to deflect blame for the crisis.

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Ministers urged to overhaul and raise carer’s allowance

Resolution Foundation says unpaid carers on low incomes pay ‘very heavy price’ for looking after loved ones

The carer’s allowance benefit should be overhauled and the basic rate of payment increased to lift more unpaid carers and disabled people out of financial hardship, according to a living standards thinktank.

The Resolution Foundation said unpaid carers on low incomes were paying a “very heavy price” – a typical penalty of 10% or as much as £7,000 a year compared with non-carers – for looking after loved ones full-time.

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Carer’s allowance: woman who won case against DWP calls for end to ‘sickening harassment’

Nicola Green, 42, speaks out after significant legal victory against department that accused her of fraud

The mother of a teenager with cerebral palsy has demanded an end to the “sickening harassment” of unpaid carers after a significant legal victory against the government.

Nicola Green, 42, was pursued by the Department for Work and Pensions (DWP) for more than a year after she was accused of fraudulently claiming nearly £3,000 in carer’s allowance.

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MPs warn social care needs substantial investment to fix ‘broken’ system

Cross-party group’s report emphasises risk of failure after finding 3.5 million people not getting care they need

A cross-party group of MPs has warned attempts to reform adult social care are doomed to fail unless ministers accept major investment is needed to overhaul a “broken” system that was failing millions of people.

Reform of social care was typically seen by governments as a “burden” on the taxpayer, and a “drain on resources” rather than a positive boost to people’s lives, the NHS and the economy, said the health and social care select committee.

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Mother of autistic boy left with £10,000 debt after breaching DWP rules by £1.92 a week

Over five-year period Oksana Shahar – who cares for her son – was paid a small amount more than carer’s allowance earnings limits allow

It was three weeks after Christmas when the bombshell letter arrived. Guy Shahar and his wife, Oksana, looked at each other in stunned disbelief.

They had followed the Guardian’s investigation into the carer’s allowance scandal that has left thousands of families with crippling debts and criminal records. Not once did they think they would join them.

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Ministers urged to act as thousands more hit by UK carer’s allowance debts

Latest overpayment figures bring total number falling foul of ‘cliff-edge’ rules on earnings to 144,000

More than 9,000 unpaid carers looking after ill and disabled loved ones have become the latest to be hit with carer’s allowance overpayment debts in the past year, prompting calls for ministers to suspend the controversial practice.

While the government has promised to tackle the carer’s allowance scandal and launched a review, the latest figures show carers continue to be unwittingly caught by the system, landing them with debts often running into thousands of pounds.

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Mother had carer’s allowance stopped while with disabled daughter in hospital

Rachel Adam-Smith says stopping benefits when loved ones are in hospital fails to recognise carers’ ongoing role

The mother of a severely disabled young woman was left in financial hardship after her carer’s allowance was wrongly stopped while her daughter was seriously ill in hospital.

Rachel Adam-Smith, 48, spent five weeks in hospital alongside her 22-year-old daughter who was being treated for severe gastrointestinal issues last month.

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DWP ‘blocked whistleblower giving evidence to carer’s allowance review’

Staffer told by official it would be inappropriate for him to give evidence to review of scandal-hit benefit

The Department for Work and Pensions has been accused of blocking a whistleblower who repeatedly raised the alarm about carer’s allowance from giving evidence to an independent review of the scandal-hit benefit.

The DWP staffer was told by a senior official it was inappropriate to share with the review their knowledge of the inner workings of a system that has become notorious for its often cruel treatment of unpaid carers.

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Fixing UK social care will be biggest challenge yet for Louise Casey

Troubleshooter for four previous prime ministers is charged with saving troubled national care sector

She is the no-nonsense civil servant from Portsmouth who was called upon by four prime ministers to tackle deep-rooted social issues, including rough sleeping, antisocial behaviour, victims’ rights and troubled families.

Now Louise Casey has been tasked by a fifth to chair an independent commission into adult social care. Her mission? Develop a plan to save the sector.

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Labour to set up review after carer’s allowance overpayments scandal

Exclusive: overhaul of system that imposed draconian penalties for innocent and minor errors in benefit claims is expected

Draconian penalties levied on unpaid carers who unwittingly rack up “overpayments” running into thousands of pounds after falling foul of benefit rules are to be overhauled, the Guardian understands.

The move comes six months after a Guardian investigation revealed tens of thousands of vulnerable unpaid carers were being ordered to repay hefty overpayments – and even threatened with criminal prosecution – over minor breaches of earnings rules.

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More than a million unpaid UK carers living in poverty, research finds

Carers UK estimates 600 people a day quit jobs to care for loved ones and calls for review of benefits system

More than a million unpaid carers in the UK who look after disabled, frail or ill relatives are living in poverty, with one in 10 experiencing such extreme hardship they struggle to afford to eat regularly or heat their homes, new research shows.

Campaigners said carers – routinely lauded by politicians as unsung heroes whose sacrifices help prop up the NHS – were paying the price for “holding society together”, and urged ministers to act to fix “unacceptable” levels of hardship.

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Woman, 86, told she no longer has to repay £13,000 in benefits in DWP U-turn

Exclusive: Case of Sia Kasparis, who has dementia, had been highlighted in Guardian investigation into unpaid care

An 86-year-old woman with advanced dementia has been told by the government she no longer has to repay a £13,000 benefit debt after her case was highlighted by the Guardian.

Sia Kasparis, who is partially blind and has been bed-bound for two years, was ordered to repay the huge sum after officials said she had failed to notify them her son had taken up caring duties.

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Which benefits are available to vulnerable people under Labour?

As the winter fuel allowance is scrapped for many pensioners, we outline some other key benefits

Millions facing ‘cruel winter’ without fuel payments, Labour MPs warn

Labour backbenchers are warning that millions of vulnerable people will face a “cruel winter” amid rising energy prices and a reduction in benefits, including the removal of winter fuel payments for millions of pensioners.

Keir Starmer’s government has promised to improve conditions for those most in need, with a commitment to “reduce and alleviate” child poverty and end the “moral scar” of food banks. And while Labour sees economic growth and creating more reliable and well-paid jobs as crucial to achieving these aims, it cannot ignore a number of pressing and often interrelated problems in the social security and benefits system.

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Winter fuel payments to be restricted as Reeves says there is £22bn spending shortfall – UK politics live

Chancellor suggests budget, on 30 October, will involve tax rises and cuts to spending and benefits

Downing Street has refused to comment on a report saying junior doctors are being offered a pay rise worth about 20% over two years.

In a story for the Times, Steven Swinford reports:

The British Medical Association’s (BMA) junior doctors committee has recommended an offer that includes a backdated pay rise of 4.05 per cent for 2023-24, on top of an existing increase of between 8.8 per cent and 10.3 per cent.

Junior doctors will be given a further pay rise of 6 per cent for 2024-25, which will be topped up by a consolidated £1,000 payment. This is equivalent to a pay rise of between 7 per cent and 9 per cent.

As we’ve said before, we’re committed to working to find a solution, resolving this dispute, but I can’t get into detailed running commentary on negotiations.

We’ve been honest with the public and the sector about the economic circumstances we face. But the government is determined to do the hard work necessary to finally bring these strikes to an end.

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Unpaid UK carers ‘face financial hit that can last decades’

Loss of income, curbs on benefits and soaring bills are piling pressure on people caring for family members

People who look after family members free of charge are taking a huge hit to their finances which could continue into their retirement as they find themselves unable to balance paid work with their caring commitments.

Recent analysis of official figures by the financial firm Just Retirement found seven in 10 people who were receiving carer’s allowance were not in paid work, and missing out on earnings and private pension contributions.

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