People with rare genetic conditions are ‘systematically ignored’ by NHS

Exclusive: One in four wait at least three years for diagnosis and many face treatment ‘access lottery’, report finds

Millions of people living with rare genetic conditions across the UK are being “systematically ignored” by the NHS and facing inadequate care, according to a report.

Rare genetic conditions, such as Williams syndrome and Duchenne muscular dystrophy, affect more than 3.5 million people across the UK. One in 17 people are affected by a rare condition at some point during their lives.

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Australia news live: SA Labor pledges $100k stamp duty waiver for ‘empty nesters’; Burke says Hanson’s Lakemba comments a national security risk

The home affairs minister says the One Nation leader was frustrated with the Muslim community because it ‘didn’t give her what she wanted’. Follow live updates

Police investigating the mistaken kidnapping of grandfather Chris Baghsarian are appealing for information about suspicious car fires that could be related to the case, AAP reports.

Hopes are fading of finding the 85-year-old alive, who was taken captive more than a week ago when three men stormed his Sydney home and bundled him into an SUV.

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Beef and lamb get 580 times more in EU subsidies than legumes, study finds

Report says common agricultural policy provides ‘unfair’ levels of support to unhealthy, meat-heavy diets

Beef and lamb receive 580 times more in EU subsidies than legumes, a report has found, despite scientists urging people to get more of their protein from less harmful sources.

Analysis by the charity Foodrise found the EU’s common agricultural policy (CAP) provides “unfair” levels of support to meat-heavy diets that doctors consider unhealthy and climate scientists consider environmentally destructive.

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With Australian private health insurance premiums set to jump by 4.41%, will policies deliver more or just cost more?

The biggest premium hike in 10 years prompts questions, as government incentives continue to drive people to take out cover merely to avoid tax penalties

The government has approved a 4.41% private health insurance premium rise from April – the largest hike in almost 10 years.

With consumers already grappling with cost-of-living pressures, including an interest rate rise earlier in February, more Australians are likely to be wondering whether keeping their private health insurance is worth it.

Melissa Davey is Guardian Australia’s medical editor

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Fertility patients win high court battle to save embryos after consent error

Judge says people should not lose chance of parenthood ‘by the ticking of a clock’ after 10-year deadline missed

More than a dozen fertility patients have won a high court battle to save their embryos, eggs and sperm from destruction after errors meant they did not renew consent to store them within the 10-year window required by law.

Ruling that the material could be kept, the judge said they should not “have the possibility of parenthood … removed by the ticking of a clock”.

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Victoria could become first Australian state to ban unnecessary surgery on intersex children

Exclusive: Legislation would prohibit deferrable, irreversible procedures until child can give informed consent, bringing state in line with ACT

Victoria will become the first Australian state to ban unnecessary surgeries on intersex children, with legislation to be introduced to parliament to ensure procedures are deferred until patients are old enough to consent to them.

The health minister, Mary-Anne Thomas, will on Tuesday introduce the health safeguards for people born with variations in sex characteristics bill, which if passed would prohibit deferrable, irreversible procedures and treatments on intersex infants and children until they can provide informed consent.

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Gen Z Australians are attempting suicide and self-harming more than previous generations, study finds

Exclusive: Separate research also shows number of young children having suicidal thoughts has risen at ‘alarming’ rate

Young Australians aged 16 to 25 are attempting to kill themselves, self-harming and experiencing suicidal thoughts in greater numbers and at earlier ages than previous generations, a landmark study has found.

It comes as Kids Helpline data provided exclusively to Guardian Australia shows the proportion of young children experiencing suicidality is increasing at “alarming” rates and being expressed by children as young as six.

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Australian taxpayers subsidise rising specialist fees as spending on Abbott-era Medicare safety net ‘explodes’

Exclusive: Health department data shows spending on the 2004 extended safety net has nearly tripled, from $324.9m in 2010 to $850.4m in 2024

Taxpayers are increasingly subsiding the rising fees of specialist doctors, as new data shows “explosive” government spending on the Medicare safety net, which has more than doubled in 15 years.

Total Medicare safety net benefits rose from $339m in 2010 to $871.4m in 2024, data requested by Guardian Australia from the federal health department shows, with an Abbott-era expansion causing the biggest blowout in costs while also increasing inequities in the health system.

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Experts say strict new FDA protocol for vaccine approval is ‘dangerous and irresponsible’

Lead FDA vaccine regulator announced new approval process after claiming Covid vaccine had killed 10 children

The leading vaccine regulator at the Food and Drug Administration (FDA) has announced a far stricter course for federal vaccine approvals, following claims from his team that Covid vaccines were linked to the deaths of at least 10 children.

Experts suggest the announcement will make the vaccine approval process significantly more difficult.

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Rage rooms: can smashing stuff up really help to relieve anger and stress?

Venues promoting destruction as stress relief are appearing around the UK but experts – and our correspondent – are unsure

If you find it hard to count to 10 when anger bubbles up, a new trend offers a more hands-on approach. Rage rooms are cropping up across the UK, allowing punters to smash seven bells out of old TVs, plates and furniture.

Such pay-to-destroy ventures are thought to have originated in Japan in 2008, but have since gone global. In the UK alone venues can be found in locations from Birmingham to Brighton, with many promoting destruction as a stress-relieving experience.

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Anti-abortion activist Joanna Howe claims her employer gave her immunity from complaints by pro-choice campaigners

University of Adelaide, who employs Howe as a law professor, states that it ‘considers each matter on its merits’

A prominent anti-abortion campaigner who was banned from the South Australian parliament and accused of bullying, claims her employer has granted her immunity from complaints from anyone who is pro-choice.

Anti-abortion activist Joanna Howe, who has pledged to make abortion “unthinkable”, says the University of Adelaide, who employs her as a law professor, has agreed that those with ideologically opposed viewpoints to hers will be deemed “vexatious”, and any complaints they make about her will not be acted upon.

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Australian diet set to worsen as national food policy is drawn up by profit-driven industry, experts warn

Exclusive: Many industries on new council are ‘associated with significant health harms’, one academic says

Cheap and unhealthy foods are set to become further entrenched in the Australian diet, according to health experts, who warn the federal government is developing a national food policy with heavy influence from profit-driven food and agriculture industries.

Dr Matt Fisher from the University of Adelaide’s Stretton Institute’s health equity department said the policy could “compromise crucial public health considerations”.

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NHS doctor suspended over alleged antisemitic social media posts

Rahmeh Aladwan barred from practising for 15 months pending inquiry amid claims she ‘celebrated terrorist acts’

An NHS doctor accused of antisemitism has been suspended for 15 months pending an investigation, the Medical Practitioners Tribunal Service (MPTS) in the UK has ruled.

The General Medical Council (GMC) is investigating Dr Rahmeh Aladwan over posts and comments made across various social media platforms after several complaints, including from the Jewish Medical Association UK and the Campaign Against Antisemitism.

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Mayors in England to get power to impose tourism tax on overnight visitors at ‘modest’ rate – UK politics live

Government announces overnight levy ahead of tomorrow’s budget

John McFall is standing down early as Lord Speaker in the House of Lords so that he can care for his wife, Joan, who has was Parkinson’s. According to Sam Blewett and Bethany Dawson in their London Playbook briefing for Politico, the main candidates to replace him are Michael Forsyth, a rightwing Scottish secretary in the final two years of the John Major government, and Deborah Bull, a crossbencher and former Royal Opera House creative director. They reports:

Labour isn’t expected to put forward a candidate as McFall’s previous political affiliation means it’s seen as another party’s turn to rule the roost, Noah [Keate] writes in to say. Forsyth has garnered support from some Labour grandees who like his traditional approach and aversion to modernization while Bull has being promoted by some female peers keen for a woman to take charge. One Tory peer described Forsyth as a “political animal” who may struggle to encourage a consensus across the chamber. A list of candidates’ register of interests and election addresses (up to 300 words) will be emailed to all peers on Dec. 1. Watch your inboxes!

Transport secretary Heidi Alexander rejected a rival proposal from Arora Group, saying Heathrow’s own plans were “the most credible and deliverable option”.

The Heathrow proposals involve building a 3,500-metre runway and require a new M25 tunnel and bridges to be built 130 metres west of the existing motorway.

Following a comparative assessment of the remaining proposals for Heathrow expansion, the government’s view is that the Northwest runway scheme brought forward by Heathrow Airport Limited offers the most credible and deliverable option, principally due to the relative maturity of its proposal, the comparative level of confidence in the feasibility and resilience of its surface access plans, and the stronger comfort it provides in relation to the efficient, resilient and sustainable operations of the airport over the long-term.

The HAL scheme is considered comparatively more mature in its approach to road infrastructure. While the HAL scheme requires major works to the M25, assessment indicates that the HWL scheme would also have a considerable impact on the M25.

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Beareaved parents face ‘harrowing’ delays for NHS postmorterms

Shortage of specialist doctors means service is in crisis, says chair of Royal College of Pathologists committee

Bereaved parents are enduring “harrowing” delays of more than a year to find out why their child died because the NHS has too few specialist doctors to perform postmortems.

The shortage of paediatric and perinatal pathologists is revealed in a report by the Royal College of Pathologists published on Sunday. It warns that the situation is “dire”, services in some parts of the UK have “totally collapsed” and families are paying the price.

37% of consultant posts in the UK are lying vacant.

The UK has just 52 paediatric and perinatal consultants and 13 are due to retire in the next five years.

Just 3% of consultants think current staffing levels are enough to sustain their service.

Only 13 resident doctors are in training to become consultants in the specialty.

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Up to 50,000 nurses could quit UK over immigration plans, survey suggests

Exclusive: union leaders say proposed changes are immoral and could threaten patient safety if there is staff exodus

Up to 50,000 nurses could quit the UK over the government’s immigration proposals, plunging the NHS into its biggest ever workforce crisis, research suggests.

Keir Starmer has vowed to curb net migration, with plans to force migrants to wait as long as 10 years to apply to settle in the UK instead of automatically gaining settled status after five years.

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Krysty was diagnosed with breast cancer months after getting the all-clear. New Australian guidelines aim to help women like her

Exclusive: New federal guidelines advise GPs to provide additional care to patients with higher breast density, which can make cancers harder to detect in mammograms

When Krysty Sullivan had a routine mammogram in 2019, she was given the all-clear.

Eleven months later, she felt a lump.

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New drug could be a breakthrough in treatment for killer TB, trial suggests

Sorfequiline shows stronger action than existing treatments against illness that killed 1.23 million last year

A new treatment for tuberculosis could boost cure rates and shorten the time needed to treat the disease by months, trial results suggest.

Globally, an estimated 10.7 million people fell ill with TB last year and 1.23 million died from it.

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Two-thirds of nurses in UK work while unwell, says union

Understaffing driving workers to ill health and discouraging them for taking leave, says Royal College of Nursing CEO

Nurses across the UK are working while unwell in understaffed hospitals, with stress as the leading cause of illness, according to research.

A survey by the Royal College of Nursing (RCN) of more than 20,000 nursing staff found that 66% had worked when they should have been on sick leave, up from 49% in 2017.

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Coalition announce emissions policy after joint party room; more magic sand products recalled over asbestos contamination – as it happened

This blog is now closed

Total fire ban in parts of New South Wales

While a storm system continues to affect parts of New South Wales’ east, the state’s west faces extreme fire danger.

I expect it will be pretty much what the Nationals have wanted all along because it’s been really clear that they have set the agenda in terms of the energy and climate policy of the Liberal Party.

I’m genuinely concerned and genuinely disappointed that this has happened because we do need to take action on climate change.

I think my a lot of my community will be going ‘Why on earth has the Coalition done this if they are seeking to ever take back seats’ like mine?

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