Category Archives: Autism

Ex-CDC acting director calls RFK Jr’s false vaccine theories ‘cruel’

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Richard Besser criticizes Trump’s health secretary pick, and says falsely linking vaccines to autism is a ‘cruel thing to do’

The former acting director of the US Centers for Disease Control and Prevention has criticized Robert F Kennedy Jr’s nomination by Donald Trump as secretary of the country’s health and human services (HHS), calling his false vaccine theories “cruel”.

In a new interview on ABC, Richard Besser, who led the CDC during Barack Obama’s administration, called Kennedy’s push to falsely link vaccines to autism a “cruel thing to do”, adding, “There are things we do for our own health, but there are things we do that are good for ourselves, our families and our communities and vaccination falls into that category.”

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Special educational needs bill in England hits record £10bn a year

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National Audit Office report finds no signs of improvement in lives of pupils despite record spending

The bill for special needs education in England has hit £10bn a year, with the number of children and young people entitled to government support in the form of education, health and care plans set to double to 1 million within a decade, a landmark report has found.

The investigation by the National Audit Office (NAO) found that despite record levels of spending there had been no signs of improvement in the lives of children with special educational needs (SEN).

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Badenoch accused of ‘stigmatising’ autism and mental health issues in comments over support – UK politics live

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The Tory leadership contender came under fire from a former cabinet colleague over her comments in a foreword to an essay

More than 100 venues are backing Martyn’s law to help protect the public from terror attacks, ahead of the second reading of the terrorism (protection of premises) bill in the House of Commons today.

Parts of the bill are named for Martyn Hett, 29, who was killed along with 21 other people when suicide bomber Salman Abedi attacked the Manchester Arena in 2017 at the close of an Ariana Grande concert.

Certainly I feel this is the beginning of the end of the campaign, although there’s a bit to go still. But, yeah, I can see it’s coming to fruition now, finally.

Martyn’s law is never meant to be punitive or onerous, like some people may suggest; it literally is very proportionate.

It depends on the size of the venue, and it’s obviously in two tiers as well, and the standard tier is actually far less restrictions than the bigger venues, 800-plus, who may have to put more stringent measures in place.

One Home Office adviser said the contract notice was signed off while the immigration minister was … Robert Jenrick himself. They argued that his plans would’ve cost nearly £200 million more, over a shorter, six-year period, and lacked the break clauses that the government has now included. Another Labour official added: “It seems Jenrick has lost his memory as well as all that weight.”

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Valued GP ‘will be forced to leave UK’ after autistic daughter refused visa

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London-based doctor Tajwer Siddiqui says Home Office rules are separating him from his wife and Alina, 19

An experienced and highly regarded doctor who is working at a GP surgery in east London says he has no choice but to walk away from his job because the Home Office is separating him from his wife and autistic daughter.

Tajwer Siddiqui says he has found himself in this situation at a time when the number of full-time GPs in the UK is falling.

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Review of gender services has major implications for mental health services

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Cass report calls for move away from mainly medical treatment as part of dramatic shift in approach to gender dysphoria

A long-awaited review by consultant paediatrician Hilary Cass into the NHS’s gender services for children calls for a dramatic shift in the type of treatment offered to children and young people with gender dysphoria.

The report proposes that instead of being offered mainly medical treatment, young people referred to NHS gender services should “receive a holistic assessment of their needs to inform an individualised care plan”, meaning that questions of gender identity should be treated alongside other possible mental health concerns.

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UK’s black children ‘face cultural barriers’ in accessing help for autism and ADHD

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Campaigner Marsha Martin says ‘there is a lot of stigma within black community’ that prevents issues being discussed

Cultural barriers are preventing black children with autism and attention deficit hyperactivity disorder (ADHD) from accessing the help they need, the founder of a UK campaign for better support has said.

Hundreds of children with special educational needs (Send) routinely wait for more than a year to get help, as local authorities across England struggle to meet unprecedented need in a dire financial climate. A Guardian investigation last month found more than 20,000 children were waiting longer than the 20-week limit to be issued with an education, health and care plan (EHCP) that details the support they require.

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‘A talented, goofy kid’: family of Ryan Gainer, autistic teen killed by police, speak out

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Shooting of 15-year-old ‘beautiful soul’ in California revives scrutiny on law enforcement abuse of youth with disabilities

When Ryan Gainer was diagnosed with autism as a toddler, he was nonverbal, and his family all learned sign language to communicate with him. But after the southern California boy learned how to speak at around age four, he was a “ball of energy” who never stopped talking, his older sister Rachel said.

He loved saying “hi” to neighbors and strangers alike, and as a young teen was known as the student who greeted everyone with a “good morning” and a smile.

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Vulnerable man pleads with UK government to block extradition to US

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Diogo Santos Coelho from Portugal faces a 52-year sentence for alleged cybercrime relating to RaidForums site

A vulnerable autistic man is pleading with the UK government to block his extradition to the US on cybercrime charges where he faces a 52-year sentence for alleged offending that began when he was a child.

Diogo Santos Coelho, who has been assessed as at very high risk of suicide, said he had been groomed and exploited online by adults from the age of 14 into committing the alleged crimes, which relate to the website RaidForums.

In the UK and Ireland, Samaritans can be contacted on freephone 116 123, or email jo@samaritans.org or jo@samaritans.ie. In the US, the National Suicide Prevention Lifeline is at 988 or chat for support. You can also text HOME to 741741 to connect with a crisis text line counselor. In Australia, the crisis support service Lifeline is 13 11 14. Other international helplines can be found at befrienders.org

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Neurodiverse women sought for jobs at GCHQ and BAE Systems

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Organisations want to recruit more women with autism, dyslexia and ADHD to work in cybersecurity roles

The British spy agency GCHQ and weapons manufacturer BAE Systems have issued an appeal to attract more neurodiverse women to work for them in cybersecurity jobs.

The employers are actively seeking women with autism spectrum disorder, dyslexia, and attention deficit hyperactivity disorder (ADHD) for cybersecurity roles to address gaps in their workforces.

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Health staff in England to be trained on learning disability and autism

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Mandatory programme named after Oliver McGowan, whose mother led a campaign after his death in 2016

Mandatory training for health and care staff in England to support people with a learning disability and autistic people has been launched following a grieving mother’s four-year campaign.

Paula McGowan’s 18-year-old son, Oliver, who had a mild learning disability and autism, died after doctors “arrogantly” gave him antipsychotic medication despite his family’s warnings that they were unsuitable.

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‘No humanity whatsoever’: pleas for UK to grant visa to autistic Ukrainian boy

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Timothy Tymoshenko was sent to Poland because of his distress but does not qualify for Homes for Ukraine scheme

A British man who has turned his Polish castle into a makeshift hotel for Ukrainian refugees has accused the UK government of showing “no humanity whatsoever” for not allowing a severely autistic teenager to come to live with an approved foster carer in Lancashire.

Pleas are mounting for compassion to be shown to Timothy Tymoshenko, 16, who fled the war in Ukraine without his parents. He is living with his 17-year-old brother, Yurii, in what was once a private palace for the prince-bishop of Wrocław in Piotrowice Nyskie, a tiny Polish village near the Czech border.

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‘A lot fell into place’: the adults who discovered they were autistic – after their child was diagnosed

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The recorded incidence of autism has increased 787% in 20 years. For many parents, getting help for an autistic child alerted them to their own traits

When John Purnell’s 10-year-old son was diagnosed as autistic, he knew exactly how to respond. “I’ve always been fascinated by research, by detail, by finding out everything there is to find out about something,” he says. “So I did a really deep dive.”

As he pored over academic papers and delved into medical science – including how many autistic people have a propensity and appetite for copious research – an unexpected realisation crept into his mind. “I was reading about the traits of an autistic person, the difficulties they often have in social situations, the need for order and planning: and suddenly I thought: this person they’re describing isn’t just my son – it’s me.”

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Perth mother may have to quit work to care for autistic son after NDIS package cut by 70%

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Labor accuses Coalition of ‘stealth’ cuts to disability funding as other families complain about recent changes

A Perth mother fears she will have to quit her job to care for her autistic son after his national disability insurance scheme package was cut by about 70%, in the latest example of what the opposition is labelling “stealth” cuts to the program.

The National Disability Insurance Agency (NDIA) insists there is no “directive to reduce funding to NDIS participant plans” and that its so-called Sustainability Action Taskforce – dubbed a razor gang by critics – is “no longer active”.

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Do I need to leave my partner for the sake of my fragile son? | Ask Annalisa Barbieri

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It’s all about your partner, your son, your dad, your friends. But you need to find a way to include your own needs in whatever you decide

I am 62 years old and semi-retired. I’ve worked hard all my life. In my 30s I had a son; it was just the two of us for a long time. My son had mental health issues in his teens and has autism; I am still friends with my son’s father, and they have a good relationship.

Ten years ago I met a lovely man and we moved in together. My son went to uni; the expectation was he’d move out once he’d graduated. He’s now 27 and still living with us.

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People said I was weak, lazy and fussy. I’m not – but I am autistic

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The late diagnosis of Melanie Sykes and Christine McGuinness came as no surprise to those who, like Sara Gibbs, have trodden the same path

The news of Melanie Sykes and Christine McGuinness’s late autism diagnoses may have come as a surprise to many. After all, they are glamorous career women. They look nothing like the stereotype of autism we as a culture are used to. I, however, was not shocked, knowing only too well that you can’t tell anything about someone’s private reality from their public image.

As I read their stories, I couldn’t help but imagine what they might be feeling. Were they elated? Confused? Excited? Terrified? Angry? Relieved? All of the above?

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‘Diagnosis is rebirth’: women who found out they were autistic as adults

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Women from around the world describe the life-changing impact of finally receiving a diagnosis

Less than 20 hours after asking women who had received a late diagnosis of autism, we received 139 replies from around the world.

There were women whose lives had been scarred by victimisation, from bullying to rape, because without a diagnosis they did not know they were highly vulnerable to manipulation and abuse.

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‘They could be the visionaries of our world’: do ‘overemotional’ people hold the key to happiness?

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One in five of us struggle to cope with everyday smells, sounds and images. Rather than a weakness, this extreme sensitivity could be a strength in everything from the pandemic to the climate crisis

“I feel I’m too sensitive for this world,” says Lena, who can’t cope with crowds or bright lights. Melissa gets her husband to watch films before her to see if she will be able to handle any violence, gore or scariness. When their grownup children bring the grandchildren round, she has to retreat to another room because their “loud laughter, the talking over each other, their swearing and their smells overwhelm me”. Lucia says she can feel “each and every fibre of her clothes” and it feels very ticklish or uncomfortable at times. Sometimes, she has to stop during sex with her partner because it becomes “too ticklish”.

Lena, Melissa and Lucia would all describe themselves as highly sensitive, a label that could be applied to up to 20% of us, according to the US-based psychologist Elaine Aron, who started studying high sensitivity in the early 90s, and published her influential book The Highly Sensitive Person in 1996.

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‘Without what made me “me”, I’d be a shadow of myself’ – portraits of life on the autism spectrum

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When photographer Mary Berridge’s son was diagnosed with Asperger’s, she began to see his world in a new light. She set out to capture a series of everyday – and exceptional – stories, one image at a time

I have been immersed in the world of autism since my son was diagnosed with Asperger syndrome. Graham had many of the traits of autism from when he was a baby: speech and motor skill delays, sensory sensitivities, anxiety in big social gatherings and more. He had seen professionals for evaluations, but did not get a diagnosis until he was seven.

This was a kid who had meltdowns over the sound of a blowdryer one floor up, the feel of a new shirt and the sight of a slice of cherry pie. Our lowest point was when he started refusing to enter homes he hadn’t been in before, or getting so upset at entering a restaurant that he would throw up. At least now I can sort of laugh when I think of the strangers in the grocery store who would approach him, then a cherubic toddler, and ask what his name was. “Mr Stupid Nobody,” was his reply.

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Guardian Australia Reads: If I wasn’t autistic, would my encyclopedic knowledge of dinosaurs be a problem?

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Laura Murphy-Oates introduces a bonus episode of our new podcast Guardian Australia Reads. Guardian Australia’s culture editor, Steph Harmon, recommends a piece by Clem Bastow about an unfair double standard on autism


You can read the original article here: If I wasn’t autistic, would my encyclopedic knowledge of dinosaurs be a problem?

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