Siena Castellon: ‘Autistic people are really struggling with how uncertain things are’

The 18-year-old autism campaigner and international children’s peace prize finalist on why diagnosis of the condition for girls urgently needs improving

Each morning Siena Castellon synchronises her morning routine to music with the same 30-minute playlist. Different songs act as time markers. “The trick is to choose music you love and to listen to the same playlist every day,” explains the teenager.

When Wonderwall by Oasis comes on she knows she should be brushing her teeth. By the time Summertime Sadness by Lana Del Rey is playing she is walking out the door.

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How long Covid forced me to confront my past and my identity

For years, I repressed thinking about three things that shaped my life and my body. But the fourth blow of coronavirus pushed it all out into the open

For six years now, I have been writing down three good things that have happened in my day, every day. It doesn’t matter how big or small they are. It could be having pastries in bed. Spotting a fox in the garden. Successfully descaling a kettle. I do not call this my gratitude journal, because I am not a motivational wellness blogger. But I have found it vital, in order to rewire my brain to focus on the things that have gone right. Left unattended, my thoughts have a tendency to slip into a downward spiral, to somewhere much darker.

I grew up in Italy, where there is a saying: “Non c’è due senza tre”, which roughly means “Good (or bad) things come in threes”. For most of my adult life, there have been three main issues that have preoccupied my thoughts when I’m lying in bed at night. I have guarded them preciously: I barely mention them, even to my closest friends. But, sometimes, repressing thoughts takes more effort than confronting them.

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Activists hail bill to make violence against LGBT people a hate crime in Italy

Bill now needs approval from upper house before becoming law

Activists in Italy have hailed a vote in the lower house of parliament to pass a bill that would make violence against LGBT people and disabled people, as well as misogyny, a hate crime.

The bill, which passed successfully despite months of protests from far-right and Catholic groups, now needs approval from the upper house, where it is backed by the ruling coalition parties, before becoming law.

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Scientists call for Covid herd immunity strategy for young

Critics describe proposal to isolate vulnerable, disabled and older people as ‘grotesque’

An international group of scientists has called on governments to overturn their coronavirus strategies and allow young and healthy people to return to normal life while protecting the most vulnerable.

The proposal, drawn up by three researchers but signed by many more, argues for letting the virus spread in low-risk groups in the hope of achieving “herd immunity”, where enough of the population is resistant to the virus to quell the pandemic.

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Nearly 14,000 Australians with disability made to live on $40 a day for 18 months before receiving pension

People without a specific severe impairment who want to access disability payment are being forced to first do 1.5 years of job search

Nearly 14,000 people have now been forced to do 18 months of job search and survive on $40-a-day jobseeker benefits before they were finally granted the disability pension.

Under Gillard government-era changes aimed at reducing the welfare spend and increasing workforce participation, people without a specific severe impairment who want to access the disability payment must complete up to 18 months of job search within three years.

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‘Frail’ people like me shouldn’t be denied lifesaving Covid care | Patience Owen

A frailty index is rationing treatment for older and disabled people who catch coronavirus. We are not sacrificial lambs

Lockdown was easy for me, it has become my daily state more frequently throughout my life. I have a debilitating connective tissue disorder that keeps me indoors most days. It was a relief I no longer had to go out and pretend to be normal when wracked with ill-health and hidden pain. Like thousands of others with rare conditions, I’m already in a minority within a minority, marginalised by our NHS, battling increasing disability day by day. So, while many fear a second lockdown over the winter months, I haven’t gone out more often since the first one was lifted because I risk a double jeopardy – catching Covid, then being a low priority for medical care.

Back in March, without consultation and days before the first lockdown, the Clinical Frailty Scale (CFS), a worldwide tool used to swiftly identify frailty in older patients to improve acute care, was adapted by the National Institute for Health and Care Excellence (Nice). It asked NHS staff in England to score the frailty of Covid patients. Rather than aiming to improve care, it seems the CFS – a fitness-to-frailty sheet using scores from one to nine – was used to work out which patients should be denied acute care. Nice’s new guidelines advised NHS trusts to sensitively discuss a possible ‘do not attempt cardiopulmonary resuscitation’ decision with all adults with capacity and an assessment suggestive of increased frailty”.

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I’m Deaf. When mask-wearing came along, I had to rebuild my world

Masks prevent me from lipreading and using facial cues to communicate –hearing people need to be more open to communicating in different ways with strangers

Since mask-wearing began, my world has disappeared. I was born partially deaf, and masks prevent me from lipreading and using facial cues to communicate.

I’m not alone. Over 460 million people worldwide have disabling hearing loss according to the World Health Organization. So how are people who are d/Deaf (lower case refers to the physical condition of deafness, capital D refers to the Deaf community) or hard of hearing surviving mask mandates?

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Victoria records 279 new Covid cases and 16 deaths as NSW reports five cases and one death

Daniel Andrews expresses ‘cautious optimism’ but declines to say whether restrictions may be eased after six-week lockdown

• Follow the Sunday coronavirus liveblog
Shorten lashes out at profit-driven aged care and Morrison government over Covid failings

Victoria recorded another 16 coronavirus deaths on Sunday as well as 279 new cases, as the premier Daniel Andrews expressed “cautious optimism” that the state’s harsh stage four restrictions were finally bringing the crisis under control.

“These numbers are heading in the right direction,” Andrews said. “They speak to a strategy that is working. At the same time, no one day necessarily guarantees the outcome – that is a long hard slog.”

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Disability care agency banned after degrading death of Adelaide woman Ann Marie Smith

NDIS quality commission says Integrity Care SA is being banned for a number of contraventions following an investigation into the ‘appalling circumstances’ of Smith’s death

The disability care provider for an Adelaide woman with cerebral palsy who died in “disgusting and degrading” conditions earlier this year has been banned from operating under the NDIS.

The NDIS Quality and Safeguards Commission on Wednesday announced it was revoking the registration of the company responsible for caring for 54-year-old woman Anne Marie Smith before her death in what police described as deeply shocking conditions in April.

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I’m a shielder who’s been out for the first time. How do I stay safe? | Pippa Kent

Shielding rules were relaxed in England on 1 August, but I’m not rushing to the shops or beach any time soon

I am one of those people who were told that from 1 August we no longer needed to shield to protect ourselves from the coronavirus.

While you might assume that, having been trapped inside our homes for the past 18 weeks, we would embrace our newfound freedom with enthusiasm, the reality remains far from it.

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Baldness and rashes? Experts split over unusual Covid-19 risk factors and symptoms

Academics analyse whether hair and hearing loss may also be linked to coronavirus

From hearing loss and rashes, to being tall and bald, as the Covid-19 pandemic develops, a host of new symptoms and risk factors are being linked to the virus. We take a look at the evidence.

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‘Coronavirus ruined everything’: the long wait for new limbs in Kurdistan

Decades of war have resulted in a high demand for prosthetics – and patients are anxious to visit clinics as they finally reopen

Concentration is etched on Hussein’s face as he walks along a scuffed yellow line painted on the floor of the clinic’s rehabilitation room. He’s getting a feel for his new prosthetic.

Hussein lost his left leg below the knee in 1987 when he stepped on a landmine while fishing at Lake Dukan, around 100km (62 miles) east of Erbil in the Kurdistan region of northern Iraq. Mines and other unexploded remnants of successive wars litter the landscape, causing new injuries every year. More than half the clinic’s 15,100 patients are amputees. Roughly 4,600 of them lost limbs as a result of conflict – 2,500 of these to landmines.

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Refugee on hunger strike over age dispute with Home Office

Bristol man sees official record of his age as five years older than he says as theft of his identity

A young man who was given permission to stay in the UK after fleeing Gaza has been on hunger strike for more than 90 days in protest at what he sees as the “theft” of his true identity on his official records.

The man, who has learning disabilities and post-traumatic stress disorder, says he was wrongly assessed as being five years older than he is when he arrived in the UK. He regards his date of birth as a crucial part of his identity and a vital link to his late parents.

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Andrew Bolt’s column mocking Greta Thunberg breached standards, press watchdog finds

News Corp columnist accuses Australian Press Council of sabotaging debate and doubles down by repeating slurs about Thunberg’s autism

Andrew Bolt’s mocking column about Greta Thunberg, which referred to the young climate campaigner as “deeply disturbed” and “freakishly influential”, breached standards and was likely to cause substantial distress, offence and prejudice, the press watchdog has found.

The Australian Press Council ruled that the language in Bolt’s August 2019 article breached standards because it attempted to “diminish the credibility of Ms Thunberg’s opinions on the basis of her disabilities and by pillorying her supporters on the basis of her disabilities”.

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‘Ginormous challenge’: boy with cerebral palsy completes marathon

Tobias Weller raises £60,000 for charity by walking up and down Sheffield road for 70 days

There were cheers from physically distanced crowds as nine-year-old Tobias Weller, a boy with autism and cerebral palsy, completed his remarkable challenge to walk a marathon to raise money for charity.

Nicknamed Captain Tobias, he has been walking up and down the Sheffield road where he lives for 70 days. He initially hoped to raise £500. A flood of support led to him raising the target to £30,000. On Sunday evening the total stood at more than £60,000.

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MPs bring bill to ban late abortions for cleft lip, cleft palate and club foot

Cross-party group proposes ending UK abortions after 24 weeks for minor disabilities

Abortion laws in Britain could be changed under cross-party proposals to ban late terminations on the grounds of minor physical abnormalities.

The abortion (cleft lip, cleft palate and club foot) bill, led by the Conservative MP Fiona Bruce and supported by 13 MPs, will be presented in parliament on 3 June.

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Court hearings via video ‘risk unfairness for disabled people’

UK equalities watchdog warns move amid virus to focus on online sessions could hamper rapport and access to justice

Remote video trials could disadvantage people with learning disabilities, the equalities watchdog has warned, as courts switch to online hearings during the coronavirus crisis.

An interim report by the Equality and Human Rights Commission (EHRC) has highlighed concerns about the impact of conducting cases without defendants being present in court.

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Signing on: The deaf workers weaning a capital city off plastic bags

Ethiopian paper bag firm employs 18 deaf workers who use sign language to persuade clients to choose greener alternative

What do you say to a business owner who has heard it all before? Answer: Don’t speak, use sign language.

At least that’s the novel approach taken by Teki Paper bags, an Ethiopian enterprise developed by deaf women.

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Disability charity boss jailed after stealing from pension fund

Patrick McLarry sentenced to five years for defrauding scheme of more than £250,000

The former head of a charity has been jailed for five years after he admitted defrauding a pension scheme for workers with disabilities and using the money to buy houses in England and France.

Patrick McLarry took more than £250,000 from the pension scheme of Yateley Industries for the Disabled and used it to buy homes for himself and his wife and pay off a debt for a pub lease.

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Disabled man starved to death after DWP stopped his benefits

MPs call for inquiry into case of Errol Graham, 57, who weighed 28.5kg when he was found dead

MPs and campaigners have called for an independent inquiry after it emerged a disabled man with a long history of mental illness starved to death just months after welfare officials stopped his out-of-work and housing benefits.

Errol Graham, a 57-year-old grandfather, and in his younger days a keen amateur footballer, weighed just four and a half stone (28.5kg) when his emaciated body was discovered by bailiffs who had broken down his front door to evict him for non-payment of rent.

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