‘Real hope’ for cystic fibrosis patients as NHS rolls out life-changing drug

Campaigners hail decision to give thousands of sufferers access to new set of drugs known as ‘modulators’

Alix Oxlade was 30 weeks into her pregnancy when scans showed fluid building up in the stomach and bowels of her unborn son, Rufus. The cause was unclear, though there was an early suspect: cystic fibrosis.

One of the most common inherited illnesses in the west, cystic fibrosis is caused by a defective protein that allows mucus to build up in the lungs, bowels and other organs and can lead to chronic infections that worsen through life. Tests subsequently showed Alix and her partner, Ben, who live in East Yorkshire, were both carriers of the disease.

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How do you best choose an Australian aged care facility and what do the star ratings mean?

Experts have questioned why so few homes are rated substandard, given the commission found one in three residents experience neglect, abuse or poor care

The star rating system of aged care homes was introduced in December 2022 to help older people and their families compare the quality and safety of services and providers.

Developed as a recommendation of the royal commission, the system has repeatedly come under scrutiny. Experts and unions have questioned why so few homes are rated substandard, given the commission found one in three residents experience neglect, abuse or poor care; and how homes on the non-compliance register manage ratings of three stars and above.

If you are having issues or concerns with your aged care, call OPAN on 1800 700 600. The National Dementia Helpline is also available on 1800 100 500.

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Victims of UK’s infected blood scandal to start receiving payouts by end of year

Those affected by contaminated blood transfusions and products in 1970s and 80s to finally receive compensation

A new authority set up to properly compensate the victims and families of the infected blood scandal is due to start making payments by the end of this year.

The Infected Blood Compensation Authority (IBCA) was set up after the inquiry in May into the worst treatment disaster in the history of the NHS concluded that governments, the health service and doctors had repeatedly failed victims. Regulations enacting the compensation scheme were laid out on Friday.

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High levels of fluoride in drinking water linked to lower IQ in children

US government study finds association between high levels of fluoride exposure and potential neurological risk

A US government report expected to stir debate concluded that fluoride in drinking water at twice the recommended limit is linked with lower IQ in children.

The report, based on an analysis of previously published research, marks the first time a federal agency has determined – “with moderate confidence” – that there is a link between higher levels of fluoride exposure and lower IQ in children. While the report was not designed to evaluate the health effects of fluoride in drinking water alone, it is a striking acknowledgment of a potential neurological risk from high levels of fluoride.

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Baby in Gaza partly paralysed from polio in territory’s first case for 25 years

WHO says infant in stable condition as it prepares to vaccinate more than 640,000 children amid war

A Palestinian baby in Gaza has been partly paralysed from polio in the first case there for 25 years, amid preparations for a difficult and dangerous vaccination campaign in the midst of war.

The head of the World Health Organization (WHO), Tedros Adhanom Ghebreyesus, confirmed that the affected infant had lost movement in his lower left leg, but was in a stable condition.

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NDIS deal passes both houses – as it happened

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Queensland Labor’s longest-serving state MP to retire

Queensland Labor’s longest-serving state MP has announced he will retire at October’s election.

Curtis Pitt is the last survivor of the “Tarago opposition”, the seven ALP MPs elected at the 2012 wipeout election.

The party won government back in 2015, after just one term.

In a Facebook post on Thursday morning, he announced his retirement after 15 years in politics.

It’s not a decision I’ve come to lightly. I’ve always said that the day I wake up and don’t feel I can give it 100 per cent, then it’s time for me to do something else.

When I think back, all of my kids have been born since I’ve been an MP. Having been a member of parliament for five terms, I know that I’ve missed so many important milestones and occasions.

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Heat deaths in Europe may triple by end of the century, study finds

Countries in south most at risk, with rise likely to outstrip fall in cold-related deaths if global heating hits 3C or 4C

Heat deaths in Europe could triple by the end of the century, with the numbers rising disproportionately in southern European countries such as Italy, Greece and Spain, a study has found.

Cold kills more people than heat in Europe, and some have argued that climate change will benefit society by reducing those deaths. But the study, published in the Lancet Public Health, found that the death toll would respond slowly to warming weather and may even rise through people growing older and more vulnerable to dangerous temperatures.

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Australia politics live: Coalition to reveal cost of nuclear plan ‘in good time’, Angus Taylor says; misbehaving MPs face fines under new standards commission

The government will introduce legislation today which includes penalties for MPs and parliament house staff who have been found to have committed wrong doing. Follow the day’s news live

Gambling ads ‘an issue of morality’: Sharkie

As Paul Karp reported yesterday, the independent MP Rebekha Sharkie is one of the MPs pushing for the major parties to be allowed a conscience vote on the forthcoming Labor gambling legislation.

The Murphy report called for a full ban. That’s the expectation of many members of parliament, both the opposition and government said and the crossbench, but many have said to me that they’re wrestling with their conscience on the idea that there would only be a partial ban and many people see this issue closely tied to their faith, an issue of morality.

So it would appear to me and also to Andrew Wilkie that, you know, a straightforward position would be to allow a conscience vote and in my time in the Parliament, we’ve had four conscience votes. I think it would naturally fit for the parameters an issue that sits within their soul.

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Aged care in the home improves lives and saves money. So why are Australians being made to wait?

‘If you ignore people at a point where they really need some of that earlier intervention … then you’re up for a higher cost,’ says expert

Twenty years ago, Patrick Evans beat cancer. Now aged 76, the repercussions of the radiation treatment that helped him are setting in.

“He has very serious aspiration and that causes him pneumonia and that lands him in hospital on a regular basis,” his wife, Inda, said. “He had a very bad episode last year and was basically in a life or death situation.”

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UK sperm donations being exported despite 10-family limit

Exclusive: Legal loophole means there is no restriction on making sperm or eggs available for additional fertility treatments abroad

Sperm donated in the UK is being exported and can be used to create large numbers of children across multiple countries, contradicting a strict 10-family limit that applies in the UK, experts warn.

A legal loophole means that, while a single donor can be used to create no more than 10 families in UK fertility clinics, there are no restrictions on companies making sperm or eggs available for additional fertility treatments abroad.

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US to survey dairy cattle brought to slaughter to study bird flu infections

Regulators will inspect cows to see how widespread virus is and determine whether ageing and cooking inactivate it

The US will track bird flu infections in dairy cows brought to slaughter to understand the ways the virus infects meat and will also continue testing raw milk cheeses to see whether the virus is inactivated in the ageing process.

The renewed focus on the US food chain is the latest front in the effort to combat the infectious bird flu virus, or H5N1, which has triggered alarm bells across the world as a potential future pandemic.

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Failure to deal with mpox outbreak ‘is risk not just to Africa but whole world’

Health leaders warn that global response to virus is test case for equity and preparation for future pandemics

A failure to show solidarity with African countries at the heart of the mpox outbreak will put the world at risk and harm preparations for future pandemics, health leaders have said.

The World Health Organization on Wednesday declared an international public health emergency in the face of rising cases that are spreading beyond the Democratic Republic of the Congo (DRC), where the virus is endemic.

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New York Planned Parenthood staff decry ‘devastating’ abortion service cuts

Health non-profit’s affiliate announced changes for September, but staff say abortion access is already limited

In the coming weeks, Planned Parenthood’s Manhattan health center will stop offering core reproductive health services, including abortions after 20 weeks and deep sedation for procedures like abortion or IUD insertion.

The Manhattan clinic currently offers abortion through 24 weeks and is the only Planned Parenthood location in the state that does so. The group has been beset by financial challenges, and plans to close a number of New York clinics in the near future.

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Labour must raise GP funding to end ‘8am scramble’, says doctors’ group

General practices forced to ‘do more and more with less and less’, says Doctors’ Association UK

Labour’s promise to “end the 8am scramble” for medical appointments will be impossible without increasing core funding for GPs, according to a leading medical association.

The health secretary, Wes Streeting, pledged during the general election campaign that Labour would “end the 8am scramble by allowing patients to easily book appointments to see the doctor they want, in the manner they choose”.

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Ambulances called to Amazon’s UK warehouses 1,400 times in five years

GMB union urges Health and Safety Executive to investigate ‘shocking’ figures revealed by the Observer

Ambulances have been called out to Amazon warehouses more than 1,400 times in the past five years, the Observer can reveal. The figures, which were described as shocking by the GMB trade union, raise fresh questions about safety at the American giant’s UK workplaces.

Amazon centres in Dunfermline and Bristol had the most ambulance callouts in Britain, listing 161 and 125 across the period respectively.

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Gaza sees first polio case in 25 years as UN calls for mass vaccinations

Highly infectious disease confirmed in 10-month-old as UN chief urges pauses in fighting to contain spread

Gaza has recorded its first polio case in 25 years, the Palestinian health ministry said on Friday, after the UN chief, António Guterres, called for pauses in the Israel-Hamas war to vaccinate hundreds of thousands of children.

Tests in Jordan confirmed the disease in an unvaccinated 10-month-old from the central Gaza Strip, the health ministry in Ramallah said.

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Chinese woman loses final appeal in her fight to freeze her eggs

Beijing court rejects lawsuit brought by Xu Zaozao, who was seeking to widen access to fertility treatment in China

A Chinese woman who filed a groundbreaking lawsuit to win the right to freeze her eggs has lost her final appeal, exhausting the legal avenues in her fight to widen access to fertility treatment in China.

Beijing No 3 intermediate people’s court ruled that Xu Zaozao’s rights had not been violated when Beijing obstetrics and gynaecology hospital refused to freeze her eggs in 2018. Chinese regulations stipulate that assisted reproductive technology is only for married couples with fertility issues. Xu, now 36, said the doctor gave her some friendly advice instead: hurry up, get married and have children now.

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Global health charities warn of ‘huge and terrible’ threat to abortion rights if Trump returns

‘Global gag rule’ and funding cuts will be ‘on different scale’ if Republicans win again, family-planning providers say

Providers of women’s healthcare around the world are preparing for potentially disastrous consequences should Donald Trump win the US presidential election in November.

Policies pursued during Trump’s last presidency caused “devastating” harm in a number of countries, said Beth Schlachter, a senior director at MSI Reproductive Choices in the US. It meant “clinics shuttered, health teams closed, women dying … but a second Trump term will be on a different scale”.

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Contaminated blood scandal payouts to start by end of year, says UK government

Individuals could get up to £2.6m in compensation over blood products that caused HIV and hepatitis C

Victims of the contaminated blood scandal will begin receiving compensation before the end of the year, and some people will be entitled to more than £2.5m, the government has confirmed.

An outline of the long-awaited compensation scheme was set out in May, after the final report of the infected blood inquiry laid bare what Rishi Sunak, the then UK prime minister, called “a decades-long moral failure at the heart of our national life”.

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NHS plans review of adult gender services following Cass criticisms

Workers in adult gender clinics allege ‘chaotic’ administration and ‘out of control’ waiting lists

The NHS has set out plans for a review into the safety of adult gender services, in response to detailed concerns raised by the author of the Cass report on gender care for children and young people.

Dr Hilary Cass, the leading consultant paediatrician, listed 16 separate points of concern about the quality of treatment being offered to adults with gender dysphoria in a strongly worded letter to NHS England.

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