Ivani’s genetic disease is worsening as she ages. Her mother hopes Australia’s new biobank will help

Exclusive: National Muscle Disease Bio-databank will store blood test and skin biopsy samples from children with diseases such as muscular dystrophy

Bindu Shree remembers her daughter Ivani had “such a nice plump face as a baby”, but now she sees gravity pulling down her four-year-old’s cheeks as the muscles in her face become weaker.

When Ivani was diagnosed with a genetic muscle disease at four months, Shree’s first response was to ask the doctors, “What’s the treatment? What can we do to help her?”

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Children worry more about rising prices than environment or crime, study finds

Four in five young people aged 10 to 17 have significant concerns about impact of cost of living crisis on their families

Children and young people have become significantly more concerned about rising prices and their family having enough money than about the environment or crime, research has found.

One in 10 children aged 10 to 17 are unhappy with their lives, according to a study by the Children’s Society.

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Ban on single-use vapes in UK may ‘flood market with illegal products’

Ministers said to be planning to legislate against the devices because of concerns about children’s health

Leading doctors and councils have welcomed reports that ministers are preparing to ban single-use vapes in the UK, but others have expressed fears a ban could lead to a “flood” of illegal products on the market.

The reports of plans to stop the sale of disposable e-cigarettes come as fears grow about their environment impact and the health risks they pose to the large number of teenagers taking up vaping.

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Schools concrete crisis is risk to pupils’ mental health, headteacher warns

Leader of a secondary school in Essex warns upheaval could have similar negative impact to that caused by Covid lockdowns

A headteacher whose 830 pupils must learn semi-remotely for at least a term because of the schools concrete crisis has warned that the upheaval could cause a recurrence of the negative mental health impact of Covid lockdowns.

James Saunders, the leader of Honywood school in Coggeshall, Essex, fears that year-seven students entering their first term at secondary school could face future struggles after the Department for Education last week ordered the closure of 22 classrooms as part of a nationwide safety alert.

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Thousands of children in England facing ‘heartbreaking’ waits for NHS dental care

Exclusive: health leaders and MPs warn of ‘perfect storm’ in which children wait ‘in agony’ for treatment

Thousands of children in England are experiencing “heartbreaking” long waits for NHS dental care, with some waiting “in agony” for years to have teeth extracted, according to shocking new figures.

Health leaders and MPs warned of a “perfect storm” in which children are struggling to access dentists to nip minor issues “in the bud”, and then facing horrific waiting times for operations to fix problems that have spiralled out of control.

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‘He could have died’: family calls for better jaundice testing of black and Asian babies

Jaxson’s symptoms were initially dismissed by health staff in a case that could have had fatal consequences

Soon after her son Jaxson was born, Lauren Clarke spotted that his eyes were yellow and bloodshot. “We kept asking if he had jaundice, but each time we were told to keep feeding him and just put Jaxson in front of a window,” she says.

It was only when Clarke was readmitted six days later with an infection that Jaxson’s jaundice was detected by a midwife. By this time, his levels were becoming dangerously high.

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Tests to assess newborns health not effective for BAME babies in UK

Minority ethnic newborns risk late diagnosis and poorer health as guidance was developed for white European babies in 1952

Tests to assess newborn babies’ health are not effective for non-white children and should be replaced, according to the NHS Race and Health Observatory.

In the UK, neonatal death rates among black and Asian newborns are much higher than for white babies.

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Keir Starmer refuses to commit to free school meals pledge

Labour leader says ‘money is a big factor’ as he also declines to promise 6.5% pay rise for teachers

Keir Starmer has refused to commit to supporting free school meals for all primary school children, as he stuck to a tough fiscal position despite pressure from inside and outside of his party.

The Labour leader also declined to commit to a 6.5% pay rise for teachers as he urged the government to resolve the dispute at the centre of strike action.

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Ministers accused of neglecting ‘tidal wave’ of child mental ill health in England

Exclusive: Research reveals only a quarter of primaries will have vital school-based support by end of 2024

Ministers have been accused of failing to grasp the “tidal wave” of mental ill health blighting children’s lives, after research found that only a quarter of English primaries will be able to offer vital school-based support by the end of next year.

With almost one in five pupils aged seven to 16 now thought to have a mental health disorder, specialist support teams were set up to work with children in schools, addressing early symptoms and reducing pressure on overstretched NHS services.

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Ministers urged to restrict marketing of vapes to children in England

Children’s commissioner points to research showing some are so addicted to nicotine they can’t concentrate in school

The children’s commissioner for England has urged ministers to crack down on the “insidious” marketing of vapes to young people, which is leaving them so addicted to nicotine they can’t concentrate on lessons.

Rachel de Souza said the government would be “failing a generation” if these “highly addictive and sometimes dangerous products” were allowed to become mainstream.

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‘Much easier to say no’: Irish town unites in smartphone ban for young children

Parents and schools across Greystones adopt voluntary ‘no-smartphone code’ in bid to curb peer pressure

On the principle of strength in numbers, parents in the Irish town of Greystones have banded together to collectively tell their children they cannot have a smartphone until secondary school.

Parents’ associations across the district’s eight primary schools have adopted a no-smartphone code to present a united front against children’s lobbying.

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Parents say baby’s sepsis death in Portugal ‘has destroyed all of us’

Deza Powell and Paul Larochelle criticise authorities for delays in transferring Adonis to an ICU

The parents of a 10-month-old baby who died on holiday in Portugal have said their lives have been destroyed.

Deza Powell and Paul Larochelle said they wanted answers from the Portuguese authorities after their son, Adonis, died of sepsis on 19 May, 48 hours after he was first treated in hospital.

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UK ministers could ban flavoured vapes to deter sales to children

Tighter rules could also demand plain packaging and more curbs on promotion of products

Vaping: quitter’s aid or addiction risk?

Ministers are considering further vaping laws, such as a ban on colourful branding or flavours, to deter their sale to children amid calls for plain packaging to be extended to the products.

No 10 said the government was considering “further steps” on vaping, with a call for evidence due to close next week. The government announced on Tuesday that it was closing a loophole in the law that allowed companies to give away free samples to children, as concern grows that usage of vapes among under 18s has been on the rise.

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‘Buckling’ NHS fails to treat 250,000 children with mental health problems

Exclusive: child mental health crisis deepens with one-third of all referrals denied help

A quarter of a million children in the UK with mental health problems have been denied help by the NHS as it struggles to manage surging case loads against a backdrop of a crisis in child mental health.

Some NHS trusts are failing to offer treatment to 60% of those referred by GPs, the research based on freedom of information request responses has found.

In the UK, Samaritans can be contacted on 116 123 or email jo@samaritans.org. You can contact the mental health charity Mind by calling 0300 123 3393 or visiting mind.org.uk. YoungMinds is at youngminds.org.uk.

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Covid vaccine to be offered to vulnerable babies and children in UK

Eligible children between six months and four years old will be offered jab from June

Children aged between six months and four years old who are deemed clinically vulnerable will be offered two doses of a Covid vaccine, public health bodies in the UK have announced.

The move, revealed by the UK Health Security Agency (UKHSA) after approval by the Joint Committee on Vaccination and Immunisation (JCVI), comes after the Pfizer/BioNTech vaccine was approved for children of this age by the Medicines and Healthcare products Regulatory Agency (MHRA) in December. Children who are not clinically vulnerable are not included in the UK-wide offer.

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Revealed: child refugees will be detained or deported under small boats plan

Senior Tories condemn ‘sickening’ plans which would allow unaccompanied minors to be held, in U-turn on past legislation

Rishi Sunak’s plan to reduce small boat crossings will effectively reverse a ban on child detention implemented under David Cameron and open the door to an expansion of the practice, the Observer understands.

With a potential Tory rebellion already brewing over the proposals, it has emerged that the Illegal Migration bill will allow the detention of families with children and even allows the deportation of unaccompanied children if it is deemed to be safe in their country of origin.

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A year on, many US parents are still reeling from baby formula shortage

Families in rural towns still faced with empty shelves, purchase limitations and fewer options of infant formula

Marie Abate’s son turned six months old last Wednesday, but the joyous milestone also marked a more anxious one: half a year of worrying about how to feed him.

Abate wasn’t just concerned about trying to establish breastfeeding or setting a feeding schedule. She has a more fundamental concern: will she be able to find enough formula to make sure he doesn’t go hungry?

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Children in mental health crisis spent more than 900,000 hours in A&E in England

Exclusive: Children as young as three in emergency departments for mental health problems, data obtained by Labour reveals

‘We are letting young people down’: the secret psychiatrist on NHS delays

Children suffering mental health crises spent more than 900,000 hours in A&E in England last year seeking urgent and potentially life-saving help, NHS figures reveal.

Experts said the huge amount of time under-18s with mental health issues were spending in A&E was “simply astounding” and showed that NHS services for that vulnerable age group were inadequate.

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Strep A: No 10 tells parents to look for signs of infection with reports of eighth death

Warning comes as health official says earlier start to cases in UK could be knock-on effect of pandemic

Downing Street has told parents to be on the lookout for signs of strep A infection after reports a primary-school pupil has become the eighth child to die in a matter of weeks.

On Monday, Alison Syred-Paul, headteacher at Morelands primary in Waterlooville, Hampshire, said: “Very tragically, we have learned of the death in recent days of a child who attended our school, who was also diagnosed with an invasive Group A streptococcal (iGAS) infection.”

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Germany faces ‘catastrophic’ paediatric bed shortage as RSV cases soar

Rising cases of respiratory syncytial virus after pandemic leading to critical hospital pressures

Intensive care doctors in Germany have warned that hospital paediatric units in the country are stretched to breaking point in part due to rising cases of respiratory infections among infants.

The intensive care association DIVI said the seasonal rise in respiratory syncytial virus (RSV) cases and a shortage of nurses was causing a “catastrophic situation” in hospitals.

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