End to Covid rules for England ‘leaves 3.8m vulnerable people feeling abandoned’

Charities warn that shift on 19 July to personal choice on virus precautions is instilling fear in many most at risk

Cancer patients, disabled people and other clinically extremely vulnerable groups say they will feel unsafe stepping the house after hearing that mask and social distancing requirements are to be abandoned, charities have warned.

Campaigners estimate that 3.8 million people have been left feeling abandoned by the government’s shift towards promoting “personal responsibility” as the sole means of navigating the surging Covid-19 infection rates in England.

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England’s ‘freedom day’ to be day of fear for elderly people, charities warn

Vulnerable and immunocompromised people anxious about 19 July end to Covid rules

Boris Johnson’s “freedom day” will be a day of fear for elderly and vulnerable people and those with compromised or suppressed immune systems, for whom the efficacy of vaccines is much reduced, charities have warned.

Citing the statement by the new health secretary, Sajid Javid, that Covid infections could surge to a record 100,000 a day in a few weeks after all social distancing and mask-wearing regulations are removed in England, Blood Cancer UK has said that 19 July “will be the day that it feels like freedoms are being taken away from” many people.

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After Britney Spears testimony, lawmakers push changes to conservatorship laws

Disability rights activists say proposed reforms don’t go far enough and that flaws in the system trap people in abusive arrangements

Last week, Britney Spears testified in court about the conservatorship that has long controlled her life, and noted there were a thousand people stuck in “abusive” arrangements like hers.

In California, lawmakers have responded to the international outcry about the singer’s peculiar legal arrangement with proposed reforms that aim to expand the rights and due process of people in conservatorships.

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Hungary’s LGBT protests and Juneteenth Day: human rights this fortnight – in pictures

A roundup of the coverage on struggles for human rights and freedoms from China to Colombia

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‘Disability is possibility’: a mission to bust myths in India – photo essay

The photographer Vicky Roy has been travelling around the country documenting people with disabilities. The project, Everyone is Good at Something, hopes to tell their stories and challenge the stigma they face

  • Photographs by Vicky Roy

When he isn’t working on the farm or making things out of jute, Gobinda Majumdar likes to walk to a tea stall near his home in Assam to buy sweets for his nieces. All this he explains with tactile signing, the only means of communication for the 37-year-old, who cannot speak and has no hearing or sight.

Born deaf, Majumdar then went blind at the age of two after contracting rubella. Life has its challenges but he hopes to find a wife. “My younger brother is married so why not me?” he told the photographer Vicky Roy, who visited him in Kamrup district as part of a project to share stories of people with disabilities in rural India.

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Normalising special needs: the Kabul school offering hope

Fatima Khalil school has given some children the first taste of education – and love – in their lives

Laughter and excited chatter burst out of the colourfully painted classrooms. In a quiet garden schoolhouse amid the jam-packed Afghan capital, Kabul, pupils run around, study and play in the country’s first official school for children with disabilities.

It’s a far cry from what most of these children have previously experienced. For many, it’s the first time in their lives they feel loved and accepted.

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‘Like losing a hand’: musicians on the crisis in hearing loss

Oscar-nominated film Sound of Metal depicts a drummer battling hearing loss. As rock stars like Myles Kennedy explain, it’s a debilitating and worryingly widespread problem

The Bafta-winning film Sound of Metal dramatises every musician’s worst nightmare. Ruben Stone, played by Riz Ahmed – who is up for a best actor Oscar this weekend – is a metal drummer who loses his hearing, and the film depicts Ruben’s loss exactly as he hears it, where the world around him and the intense music he plays suddenly fade to a muted and distorted drone.

These scary and involving scenes have highlighted a crisis in hearing damage right across the music industry, be it through deafness or tinnitus (a constant ringing in the ears). In a report published last month by the British Tinnitus Association (BTA), over half of the 74 tinnitus-suffering musicians surveyed said they developed the condition due to noise exposure, but nearly a quarter said they never wore hearing protection.

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‘My son could die’: the disabled Syrian refugees on the sharp end of UK aid cuts – photo essay

Two centres in Lebanon are among the casualties of cuts to British aid, with devastating consequences for thousands of patients and families

In January, the British government told its diplomats to start finding 50–70% cuts in aid funding. In March, it was revealed it was slashing aid funding to Syrian refugee projects by a third. Among the many casualties of those cuts is a project in Lebanon.

Two centres – in Zahlé and in Beirut – offer specialised services, such as speech and physiotherapy, for disabled Syrian refugees who can’t afford to pay for them.

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‘I am a woman who wants’: on disability and desire

Cerebral palsy made my body a country of error and pain. It took me years to accept the part of me that craves intimacy

The autumn I was 19, I entered my college dining hall in California just in time to overhear a boy telling a table of mutual acquaintances that he thought I was very nice, but he felt terribly sorry for me because I was going to die a virgin. This was already impossible, but in that moment all that mattered was the blunt force of the boy’s certainty. He hadn’t said he could never … or “She might be pretty, but” … or “Can she even have sex?” or even “I’d never fuck a cripple” – all sentences I’d heard or overheard by then. What he had done was, firmly, with some weird, wrong breed of kindness in his voice, drawn a border between my body and the country of desire.

It didn’t matter that, by then, I’d already done my share of heated fumbling in narrow dorm-room beds; that more than one person had already looked at me and said: “I’m in love with you,” and I had said it back. It didn’t matter that I’d boldly kissed a boy on his back porch in sixth grade, surprising him so much that the BB gun he was holding went off, sending a squadron of brown squirrels skittering up into the trees. Most of me was certain that the boy in the dining hall was right in all the ways that really mattered. He knew I’d never be the kind of woman anyone could really want, and I knew that even my body’s own wanting was suspect and tainted by flaw. My body was a country of error and pain. It was a doctor’s best attempt, a thing to manage and make up for. It was a place to leave if I was hunting goodness, happiness or release.

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Europe launches recruitment drive for female and disabled astronauts

European Space Agency aims to take on 26 people for missions to the Moon and eventually to Mars

European space chiefs have launched their first recruitment drive for new astronauts in 11 years, with particular emphasis on encouraging women and people with disabilities to join missions to the Moon and, eventually, Mars.

The European Space Agency (ESA) said on Tuesday that it was looking to boost the diversity of its crews as it cavassed for up to 26 permanent and reserve astronauts.

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Autism in India: how a pioneering jobs scheme is opening up opportunities

Company says adapting recruitment processes for neurodiverse groups disproportionately affected by unemployment has led to increased innovation

Talking to people can be difficult for Rishabh Birla, but his last job demanded he did a lot of it. He has autism and finds making eye contact uncomfortable. For Birla, the rules of conversation are puzzling and he sometimes veers off course, alarming the other person.

A 25-year-old postgraduate, Birla had been working at a cosmetics startup in Thane, not far from Mumbai. “The job involved communicating with different clients to keep track of their orders. It was exhausting to interact with so people every day,” he says.

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‘My personal lockdown has been much longer’: on chronic illness, before and after Covid

Life before was a little different, but not a lot. Now I feel a new resilience and hope

Read more: Laura Barton on how a daily call to California got her through lockdown and Elle Hunt on moving to the other side of the world and the pandemic

I’ve been inside my cramped terrace house for nearly a year now. There haven’t been walks outside, or trips to the shops. Every morning, I wake into a day the same as yesterday. I reach out a hand to the cat who I know will be curled by my right side, listen for the creak of my son climbing down from his bunk bed. He will come and bundle himself under my covers, and we will begin again, another day juggling his schoolwork and my writing work, all conducted mostly from my bed.

I remember, dream-like, two weeks in the summer last year when it felt safe enough for my partner to fly over from Denmark, after six months apart. We drove to quiet places and he pushed me in my wheelchair. I wept, happy to see him and the green trees, and to eat picnics on the warm ground, a family again. It has been six months since then, and so we sit each day in front of iPads, touching fingers to the screen, baffled and smiling to still be in this strange, unforeseen predicament – falling in love, still, because distance does nothing to halt that. My life is one of pain, fatigue, activity, laughter.

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Why Deaf interpreters are a crucial tool during the pandemic

More people than ever are being exposed to sign language through Covid press briefings as interpreters work to pass on vital information

Saamanta Serna describes herself as a Coda – the child of a Deaf adult. She grew up up with a Deaf mother and a father who is hearing and an American sign language (ASL) interpreter, and later decided to pursue interpreting herself after high school.

Now a certified ASL interpreter, Serna has done frequent in-person interpreting for medical appointments during Covid. She has also noticed a change in the world’s perception of sign language since the beginning of the pandemic: more people are paying attention.

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Siena Castellon: ‘Autistic people are really struggling with how uncertain things are’

The 18-year-old autism campaigner and international children’s peace prize finalist on why diagnosis of the condition for girls urgently needs improving

Each morning Siena Castellon synchronises her morning routine to music with the same 30-minute playlist. Different songs act as time markers. “The trick is to choose music you love and to listen to the same playlist every day,” explains the teenager.

When Wonderwall by Oasis comes on she knows she should be brushing her teeth. By the time Summertime Sadness by Lana Del Rey is playing she is walking out the door.

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How long Covid forced me to confront my past and my identity

For years, I repressed thinking about three things that shaped my life and my body. But the fourth blow of coronavirus pushed it all out into the open

For six years now, I have been writing down three good things that have happened in my day, every day. It doesn’t matter how big or small they are. It could be having pastries in bed. Spotting a fox in the garden. Successfully descaling a kettle. I do not call this my gratitude journal, because I am not a motivational wellness blogger. But I have found it vital, in order to rewire my brain to focus on the things that have gone right. Left unattended, my thoughts have a tendency to slip into a downward spiral, to somewhere much darker.

I grew up in Italy, where there is a saying: “Non c’è due senza tre”, which roughly means “Good (or bad) things come in threes”. For most of my adult life, there have been three main issues that have preoccupied my thoughts when I’m lying in bed at night. I have guarded them preciously: I barely mention them, even to my closest friends. But, sometimes, repressing thoughts takes more effort than confronting them.

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Activists hail bill to make violence against LGBT people a hate crime in Italy

Bill now needs approval from upper house before becoming law

Activists in Italy have hailed a vote in the lower house of parliament to pass a bill that would make violence against LGBT people and disabled people, as well as misogyny, a hate crime.

The bill, which passed successfully despite months of protests from far-right and Catholic groups, now needs approval from the upper house, where it is backed by the ruling coalition parties, before becoming law.

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Scientists call for Covid herd immunity strategy for young

Critics describe proposal to isolate vulnerable, disabled and older people as ‘grotesque’

An international group of scientists has called on governments to overturn their coronavirus strategies and allow young and healthy people to return to normal life while protecting the most vulnerable.

The proposal, drawn up by three researchers but signed by many more, argues for letting the virus spread in low-risk groups in the hope of achieving “herd immunity”, where enough of the population is resistant to the virus to quell the pandemic.

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Nearly 14,000 Australians with disability made to live on $40 a day for 18 months before receiving pension

People without a specific severe impairment who want to access disability payment are being forced to first do 1.5 years of job search

Nearly 14,000 people have now been forced to do 18 months of job search and survive on $40-a-day jobseeker benefits before they were finally granted the disability pension.

Under Gillard government-era changes aimed at reducing the welfare spend and increasing workforce participation, people without a specific severe impairment who want to access the disability payment must complete up to 18 months of job search within three years.

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‘Frail’ people like me shouldn’t be denied lifesaving Covid care | Patience Owen

A frailty index is rationing treatment for older and disabled people who catch coronavirus. We are not sacrificial lambs

Lockdown was easy for me, it has become my daily state more frequently throughout my life. I have a debilitating connective tissue disorder that keeps me indoors most days. It was a relief I no longer had to go out and pretend to be normal when wracked with ill-health and hidden pain. Like thousands of others with rare conditions, I’m already in a minority within a minority, marginalised by our NHS, battling increasing disability day by day. So, while many fear a second lockdown over the winter months, I haven’t gone out more often since the first one was lifted because I risk a double jeopardy – catching Covid, then being a low priority for medical care.

Back in March, without consultation and days before the first lockdown, the Clinical Frailty Scale (CFS), a worldwide tool used to swiftly identify frailty in older patients to improve acute care, was adapted by the National Institute for Health and Care Excellence (Nice). It asked NHS staff in England to score the frailty of Covid patients. Rather than aiming to improve care, it seems the CFS – a fitness-to-frailty sheet using scores from one to nine – was used to work out which patients should be denied acute care. Nice’s new guidelines advised NHS trusts to sensitively discuss a possible ‘do not attempt cardiopulmonary resuscitation’ decision with all adults with capacity and an assessment suggestive of increased frailty”.

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I’m Deaf. When mask-wearing came along, I had to rebuild my world

Masks prevent me from lipreading and using facial cues to communicate –hearing people need to be more open to communicating in different ways with strangers

Since mask-wearing began, my world has disappeared. I was born partially deaf, and masks prevent me from lipreading and using facial cues to communicate.

I’m not alone. Over 460 million people worldwide have disabling hearing loss according to the World Health Organization. So how are people who are d/Deaf (lower case refers to the physical condition of deafness, capital D refers to the Deaf community) or hard of hearing surviving mask mandates?

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