Category Archives: Down’s syndrome

Government suffers seven defeats on Rwanda bill as peers vote to tighten safeguards – UK politics live

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Lords back amendments saying bill must comply with international law, on classifying Rwanda as a safe country and independent monitoring

Yesterday I covered quite a lot of comment on the Rachel Reeves’ Mais lecture based on a three-page press release sent out by Labour with advance extracts. The full speech runs to 8,000 words and it is certainly worth a read. Here is some commentary published after the full text was made public.

Paul Mason, the former economics journalist who is now an active Labour supporter, says in a blog for the Spectator that Reeves is proposing an approach that should make it easier for the government to justify capital investment. He explains:

Reeves effectively offered markets a trade-off. She set out the same broad fiscal rule as the government: debt falling at the end of five years and a deficit moving towards primary balance. She will make it law that any fiscal decision by government will be subject to an independent forecast of its effects by the OBR. But, she said: “I will also ask the OBR to report on the long-term impact of capital spending decisions. And as Chancellor I will report on wider measures of public sector assets and liabilities at fiscal events, showing how the health of the public balance sheet is bolstered by good investment decisions.”

Why is this so big? Because the OBR does not currently model the ‘long-term impact of capital spending decisions’. It believes that £1 billion of new capital investment produces £1 billion of growth in the first year, tapering to nothing by year five. Furthermore, since 2019 it has repeatedly expressed scepticism that a sustained programme of public investment can produce a permanent uplift in the UK’s output potential.

George Eaton at the New Statesman says the Reeves speech contained Reeves’ “most explicit repudiation yet of the model pursued by Tony Blair and Gordon Brown’s governments”. He says:

In her 8,000-word Mais Lecture, delivered last night at City University, the shadow chancellor offered her most explicit repudiation yet of the model pursued by Tony Blair and Gordon Brown’s governments. Though she praised New Labour’s record on public service investment and poverty reduction, Reeves warned that the project failed to recognise that “globalisation and new technologies could widen as well as diminish inequality, disempower people as much as liberate them, displace as well as create good work”.

She added that the labour market “remained characterised by too much insecurity” and that “key weaknesses on productivity and regional inequality” persisted. This is not merely an abstract critique – it leads Reeves and Keir Starmer to embrace radically different economic prescriptions.

Mais lecture is the most intellectually wide-ranging speech Rachel Reeves has given. Worth reading for takes on Lawson, austerity, New Labour, link between dynamism & worker-security, and how geo-politics changes our national growth story (& more besides)

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Mar Galcerán makes history as Spain’s first parliamentarian with Down’s syndrome

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After being elected to Valencia’s regional assembly, Galcerán says she wants to be seen as a person, not for her disability

For decades she battled to ensure that people with intellectual disabilities were part of the conversation. The extent of the progress she had made, however, was laid bare recently when Mar Galcerán became Spain’s first parliamentarian with Down’s syndrome.

“It’s unprecedented,” the 45-year-old told the Guardian. “Society is starting to see that people with Down’s syndrome have a lot to contribute. But it’s a very long road.”

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Barbie doll with Down’s syndrome launched by Mattel

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Firm partnered with US charity and medical experts to create part of ‘most diverse and inclusive doll line’

Barbie is launching its first doll with Down’s syndrome in an effort to help more children find a toy that represents them.

Mattel bosses said they wanted to bring out the doll to “enable all children to see themselves in Barbie”. They partnered with the National Down Syndrome Society (NDSS) in the US to bring the product to market.

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Rapper Aitch inspired by sister to skydive for Down’s syndrome awareness

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Musician cheered on during jump by his sister Gracie, who has the condition and regularly features in his work

Rapper Aitch has skydived to raise money and awareness for Down’s syndrome, inspired by his sister Gracie, who has the condition. Gracie, 13, regularly features in the Manchester-born rapper’s music and recently joined her brother in the video for his latest single, Round 2.

Although the skydive had been scheduled to take place in March to coincide with Down’s syndrome Awareness week, windy conditions postponed the jump.

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The stars with Down’s syndrome lighting up our screens: ‘People are talking about us instead of hiding us away’

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From Line of Duty to Mare of Easttown, a new generation of performers are breaking through. Meet the actors, models and presenters leading a revolution in representation

In the middle of last winter’s lockdown, while still adjusting to the news of their newborn son’s Down’s syndrome diagnosis, Matt and Charlotte Court spotted a casting ad from BBC Drama. It called for a baby to star in a Call the Midwife episode depicting the surprising yet joyful arrival of a child with Down’s syndrome in 60s London, when institutionalisation remained horribly common. The resulting shoot would prove a deeply cathartic experience for the young family. “Before that point, I had shut off certain doors for baby Nate in my mind through a lack of knowledge,” Matt remembers. “To then have that opportunity opened my eyes. If he can act one day, which is bloody difficult, then he’s got a fighting chance. He was reborn for us on that TV programme.”

It’s a fitting metaphor for the larger shift in Down’s syndrome visibility over the past few years. While Call the Midwife has featured a number of disability-focused plotlines in its nearly decade-long run – actor Daniel Laurie, who has Down’s syndrome, is a series regular – the history of the condition’s representation on screen is one largely defined by absence.

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‘We are sick of double speak’: French government intensifies attack on Johnson over Channel tragedy – live

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Latest updates: Macron slams Boris Johnson for trying to negotiate with him via Twitter as it cancels talks with UK officials over Channel crossings

The French government has accused Boris Johnson of “double speak”. In a briefing, the French government spokesperson, Gabriel Attal, said that the proposal in Johnson’s letter to Emmanuel Macron for France to take back people who successfully cross the Channel on small boats was “clearly not what we need to solve this problem”.

According to PA Media, Attal also said that the letter doesn’t correspond at all” with the discussions Johnson and Macron had when they spoke on Wednesday. Atta went on: “We are sick of double speak.”

What would be completely unacceptable, a stain on our country and a scandal would be to see in future those whose parents have died being placed in inappropriate institutions, in elderly care homes or mental health institutions.

That would be something that I think would bring shame to our country as well as an utterly inappropriate lifestyle for those to whom we should be giving the best possible care.

This is not a bill about a condition, it is not about dealing with Down’s syndrome, it is about people who deserve the same ability to demand the best health, education and care as the rest of our society.

It is not on our part an act of charity, it is an act of empowerment and the recognition that all members of our society must have a right to respect, independence and dignity. That is why I brought this bill forward.

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People with chronic conditions among most at risk from Covid even after jabs

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Research finds those with Down’s syndrome, Parkinson’s and other conditions may benefit from booster dose

People living with chronic conditions such as Down’s syndrome and dementia remain among the most vulnerable to Covid-19 even after vaccination, research has found.

The study, based on data from more than 6.9 million vaccinated adults, 5.2 million of whom had received both doses, found that being vaccinated offers powerful protection against hospitalisation for almost all groups. However, a risk calculator based on the data shows that some groups remain at particular risk and may benefit from booster vaccine doses and treatments such as monoclonal antibodies.

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How a Spanish town pioneered dolls with Down’s syndrome

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The town of Onil has changed the lives of children everywhere

The first time Kelle Hampton glimpsed a doll with Down’s syndrome, anger boiled up inside her. Its exaggerated features bore little resemblance to the sweet facial characteristics that she loved about her daughter Nella, who was born with the genetic disorder.

The experience set the US blogger and author firmly against such dolls. But to her surprise, years later she found herself smitten with another doll. This time it had been carefully crafted to subtly capture the characteristics that made Nella unique. “This one was simply a beautiful doll any child would want to play with,” she said.

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